Complex Regional Pain Syndrome, CRPS, formerly known as Reflex Sympathetic Dystrophy or RSD, is a progressive disease of the Autonomic Nervous System, and more specifically, the Sympathetic Nervous System. Although the causes are not known, CRPS generally takes hold of the human body after a physical injury. The disease causes pain that is characterized as constant, extremely intense, and out of proportion to the original injury. The pain is typically accompanied by swelling, skin changes, extreme sensitivity, and can often be debilitating. It usually affects one or more of the four limbs but can occur in any part of the body and in over 70% of the victims it spreads to additional areas.
CRPS is ranked as the most painful form of chronic pain that exists today by the McGill Pain Index.
Our friend Allen was properly diagnosed with CRPS in 2011, although he has faced the disease for many years without knowing the cause, or even knowing a name for the painful condition. Allen has full body Type-2 CRPS, so every cell in his body is affected. After being accepted for a new experimental treatment in YEAR TBD, Allen's doctors believe that he is on the verge of a technological and medical breakthrough. The new treatment, known as Electron Modulation Therapy, has shown extreme promise in cases just like Allen's. With this highly specialized therapy, and complete commitment, Allen may be able to find a better quality of life.
We can help, and that's why friends of Allen's are coming together to raise awareness and funds about what he's going through. Please join us in helping.
Allen Losi CRPS Awareness Orange Ribbon
In October of 2018, some friends of Allen's decided to do what we could to help Allen in his ongoing fight against CRPS.
First, we held a benefit show. The Benefit Show at Alex's Bar went off without a hitch, and we were able to help Allen get on the right path. Thanks to longtime shredder and bar owner Alex Hernandez for so generously allowing us to invade the bar for the night. The show was on Saturday, November 17th, 2018. The show featured one of the original Skate Rock bands, the Faction, with Steve Caballero on bass, along with Screaming Lord SAlba and his Heavy Friends; Flat Spots, featuring Allen Losi, Matt Hensley, and Joe Sib; and Loose Trucks. There was a giant raffle of skateboarding goods from great companies, and 100% of the proceeds went to Allen's ongoing expenses.
Next, we worked to collect some rare and collectible skateboarding and music pieces and experiences for an ongoing online auction. Although some of these were auctioned and raffled throughout the year, the majority of them went up for auction in November 2019, and another big chunk was raised for Allen. There are still some amazing items available on eBay. You can find those by clicking here. You can help by donating, if you've got some collectible stuff, or even any skateboard or music gear you think would help the cause. You can also help by spreading the word, sharing the auction page. If you've got something to donate, please get in touch. If you're a collector looking for some cool stuff from Allen's skateboarding peers, please check out the link above.
The Go Fund Me we set up for Allen's shoulder surgery was overshadowed by the auction and the event, and all funds were returned to the people who donated. IF a new CrowdFunding page is set up for Allen we will announce it here.
We are still in the process of setting up a very easy payment system for those who cannot afford to make a larger donation. The idea came from a payment plan that Skateistan offers. They made it easy to set up a recurring payment of a small amount each month, and our hope is that we can get 250 people -- or more! -- to sign up for a $10 donation every month for at least a year. This would ensure that he'll be able to keep his health insurance valid until he has recovered from his shoulder surgery, and also be able to continue his electron energy treatments for at least a year.
Thanks for reading, stay tuned or sign up for updates.
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The photos used on this site were taken by J. Grant Brittain, James Cassimus, Jim Goodrich, MoFo, Rich Rose, Tod Swank, Mark Waters, Anthony Acosta, and Doug Pensinger. If we've missed a photo credit, please let us know and we'll gladly credit you, or remove your photos. Thanks to all the photographers for their permission to use their copyrighted property. Also thanks to Garry Scott Davis for his Allen Losi Orange Ribbon™ artwork.
Click here to visit RDShope.org and get a lot of great information about this debilitating disease.
Click here to visit RDShope.org and read about the Orange Ribbon of awareness.
Wikipedia is a great resource for information on many subjects. Remember, it's user sourced and generated, so take things with a grain of salt. CRPS on Wikipedia is here.
For the Tracker book, the crew did an interview with Allen. Check it out here.
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